Rare diseases3 days agoMP vows to help teenager access life-changing drugBrogan Johnson cannot afford the medication that will slow her life-limiting condition.3 days ago5 days agoMum wants son with childhood dementia to 'experience life'Bobby's mum, Sophie, says she wants him to "get the most out of his short life'" after his diagnosis.5 days ago7 days agoTeen begs PM for expensive life-extending drugsBrogan Johnson, who has Friedreich's ataxia, wants a life-changing drug to be available on the NHS.7 days ago7 days agoWheelchair appeal smashes target in a weekCorey Haseley has a rare, life-limiting condition and needed £5,00 for a new lightweight wheelchair.7 days ago12 Oct 2026'I wasn't meant to reach 20 - now I need help'Corey Haseley, from Telford, has just three months to get the money he needs for a new wheelchair.12 Oct 20261 Oct 2026'I lost my mum and brothers to a genetic disease'George O'Neill lost his mother and two brothers to Melas syndrome and is now undergoing tests.1 Oct 202625 Sept 2026'AI helped diagnose my daughter's rare condition'Rosie says her toddler's symptoms included an unknown heart condition and dilated pupils.25 Sept 202622 Sept 2026Sisters with life-limiting condition taking NHS fight to ParliamentOlivia Dews and sister Charlotte Casey have a life limiting neurological condition.22 Sept 202622 Sept 2026Sisters with life-limiting condition taking NHS fight to ParliamentOlivia Dews and Charlotte Casey have Freidriech's Ataxia, a debilitating neurological condition.22 Sept 2026...
